Barriers in social integration of post traumatic spinal cord injury patients

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Journal of Clinical Orthopaedics | Vol 6 | Issue 1 |  Jan-Jun 2021 | page: 6-13 | Quamar Azam, Bhaskar Sarkar, Siddharth Dubey, Javed Khan, Siddharth Lamba

Author: Quamar Azam [1], Bhaskar Sarkar [1], Siddharth Dubey [2], Javed Khan [3], Siddharth Lamba [4]

[1] AIIMS, Rishikesh. MS(Ortho), India.
[2] SRMSIMS, Bareilly. MS(Orthopaedics), Barielly, India.
[3] Sharda hoispital. Barielly. MS(Orthopaedics), Bareilly, India.
[4] NIMS Medical college& Hospital, Jaipur. DNB(Orthopaedics), Jaipur ,India.

Address of Correspondence
Dr. Siddharth Lamba,
Assistant professor (Orthopaedic Department). NIMS Medical college & Hospital. Jaipur, India.
E-mail: drsiddharthorth@gmail.com

Abstract

Study design: This was a cross-sectional follow-up study.
Objective: The objective of the study was to study barriers in social integration and community participation of post-traumatic spinal injury patients. Secondary objective is to suggest measures to enhance gainful community integration of these victims to lead better quality of life and productive to the society.
Background: Spinal cord injury (SCI) is a devastating event in one’s life and management of these patients is a challenge not only to treating physicians but also family and society related to patients. Absence of step-down facilities, non-existent insurance policy, lack/unavailability of qualitative assistive devices, and medical and rehabilitation services coupled with almost negligible financial support (disability allowance) from government are serious impediments in continuity of standard care.
Materials and Methods: A total of 141 patients who satisfied the inclusion criteria and survived beyond 1 year were included in our study and were assessed on parameters of economic independence, domestic life, physical independence, psychosocial, and spiritual support. A modified form of CHART score was also implemented to assess parameters.
Results: On comparison with Craig Handicap Assessment and Reporting Technique-SF parameters, each parameter showed a strong correlation with each other when Pearson correlation coefficient analysis was done. Age, level of education, employment status, and ASIA Impairment Scale showed a significant (P <0.01) when analyzed with parameters for rehabilitation assessment in our study.
Conclusion: Significant number of SCI patients remains neglected, largely deserted and non-productive to the society. Certain inexpensive and easy to implement recommendations can remove the impediments and offer them a quality of life they deserve.
Key words: Spinal cord injury, social integration, barrier, developing nation.

References

1. Furlan JC, Sakakibara BM, Miller WC, Krassioukov AV. Global incidence and prevalence of traumatic spinal cord injury. Can J Neurol Sci 2013;40:456-64.
2. Kumar R, Lim J, Mekary RA, Rattani A, Dewan MC, Sharif SY, et al. Traumatic spinal injury: Global epidemiology and worldwide volume. World Neurosurg 2018;113:e345-63.
3. JUMAR Dijkers MP. Correlates of life satisfaction among persons with spinal cord injury. Arch Phys Med Rehabil 1999;80:867-76.
4. Sekaran P, Vijayakumari F, Hariharan R, Zachariah K, Joseph SE, Senthil Kumar RK. Community reintegration of spinal cord-injured patients in rural south India. Spinal Cord 2010;48:628-32.
5. Scivoletto G, Miscusi M, Forcato S, Ricciardi L, Serrao M, Bellitti R, et al. The rehabilitation of spinal cord injury patients in Europe. In: Visocchi M, Mehdorn HM, Katayama Y, Von Wild KR, editors. Trends in Reconstructive Neurosurgery. Cham: Springer International Publishing; 2017. p. 203-10.
6. Wagner FB, Mignardot JB, Le Goff-Mignardot CG, Demesmaeker R, Komi S, Capogrosso M, et al. Targeted neurotechnology restores walking in humans with spinal cord injury. Nature 2018;563:65-71.
7. Singh R, Rohilla RK, Siwach R, Dhankar SS, Kaur K. Understanding psycho-social issues in persons with spinal cord injury and impact of remedial measures. Int J Psychosoc Rehabil 2012;16:104-11.
8. Khazaeipour Z, Norouzi-Javidan A, Kaveh M, Khanzadeh Mehrabani F, Kazazi E, Emami-Razavi SH. Psychosocial outcomes following spinal cord injury in Iran. J Spinal Cord Med 2014;37:338-45. Waters RL, Lunsford BR. Energy cost of paraplegic locomotion. J Bone Joint Surg Am 1985;67:1245-50.
9. Silver J, Ljungberg I, Libin A, Groah S. Barriers for individuals with spinal cord injury returning to the community: A preliminary classification. Disabil Health J 2012;5:190-6.
10. Pandey VK, Nigam V, Goyal TD, Chhabra HS. Care of post-traumatic spinal cord injury patients in India: An analysis. Indian J Orthop 2007;41:295-9.
11. Prabhaka MM, Thakker TH. A follow-up program in India for patients with spinal cord injury: Paraplegia safari. J Spinal Cord Med 2004;27:260-2.
12. Burns AS, O’Connell C. The challenge of spinal cord injury care in the developing world. J Spinal Cord Med 2012;35:3-8.
13. Frank RG, Kashani JH, Wonderlich SA, Lising A, Visot LR. Depression and adrenal function in spinal cord injury. Am J Psychiatry 1985;142:252-3.
14. Kennedy P, Rogers BA. Anxiety and depression after spinal cord injury: A longitudinal analysis. Arch Phys Med Rehabil 2000;81:932-7.
15. Shin JC, Goo HR, Yu SJ, Kim DH, Yoon SY. Depression and quality of life in patients within the first 6 months after the spinal cord injury. Ann Rehabil Med 2012;36:119-25.
16. Wang CH, Tsay SL, Bond AE. Post-traumatic stress disorder, depression, anxiety and quality of life in patients with traffic-related injuries. J Adv Nurs 2005;52:22-30.
17. Otis C, Marchand A, Courtois F. Risk factors for posttraumatic stress disorder in persons with spinal cord injury. Top Spinal Cord Inj Rehabil 2012;18:253-63.
18. Khazaeipour Z, Taheri-Otaghsara SM, Naghdi M. Depression following spinal cord injury: Its relationship to demographic and socioeconomic indicators. Top Spinal Cord Inj Rehabil 2015;21:149-55.
19. Krause JS, Kemp B, Coker J. Depression after spinal cord injury: Relation to gender, ethnicity, aging, and socioeconomic indicators. Arch Phys Med Rehabil 2000;81:1099-109.
20. Kennedy P, Duff J, Evans M, Beedie A. Coping effectiveness training reduces depression and anxiety following traumatic spinal cord injuries. Br J Clin Psychol 2003;42:41-52.
21. Franceschini M, Di Clemente B, Rampello A, Nora M, Spizzichino L. Longitudinal outcome 6 years after spinal cord injury. Spinal Cord 2003;41:280-5.
22. Biering-Sørensen F, Sønksen J. Sexual function in spinal cord lesioned men. Spinal Cord 2001;39:455-70.
23. Sharma SC, Singh R, Dogra R, Gupta SS. Assessment of sexual functions after spinal cord injury in Indian patients. Int J Rehabil Res 2006;29:17-25..

How to Cite this article: Azam Q, Sarkar B, Dubey S, Khan J, Lamba S. Barriers in social integration of post traumatic spinal cord injury patients. Journal of Clinical Orthopaedics Jan-Jun 2021;6(1):6-13.

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